God, you’re my last chance of the day.
I spend the night on my knees before you.
Put me on your salvation agenda;
take notes on the trouble I’m in.
I’ve had my fill of trouble;
I’m camped on the edge of hell.
Jennifer Brea was a PhD student at Harvard when, one night, she found she couldn’t write her own name. Five years ago, TED Fellow Jennifer Brea became progressively ill with myalgic encephalomyelitis, commonly known as chronic fatigue syndrome, a debilitating illness that severely impairs normal activities and on bad days makes even the rustling of bed sheets unbearable. In this poignant talk, Brea describes the obstacles she’s encountered in seeking treatment for her condition, whose root causes and physical effects we don’t fully understand, as well as her mission to document through film the lives of patients that medicine struggles to treat.
Originally posted 2017-10-16 09:00:23.